Goldenhar syndrome/Hemifacial Microsomia:

Hemifacial Microsomia/Goldenhar syndrome is a condition in which the lower half of one side of the face does not grow normally. The most obvious sign of this condition is a partially formed ear or total absence of an ear. In Goldenhar syndrome benign growths of the eye (epibulbar dermoids) are present. Children with Goldenhar syndrome may also have neck problems, which are most commonly caused by a fusion or bony bridges between the bones of the neck.

For more detailed information, please download our free booklet, A Guide to Understanding Hemifacial Microsomia and folleto en Espanol.

NORD Goldenhar/Hemifacial Microsomia

Hemifacial Microsomia/Goldenhar syndrome stories on The Mighty

Mother tries to bring awareness to craniofacial conditions

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