Many families that have a member with a craniofacial condition feel isolated and alone. With Family Networking and social networking, family members are connected with others in similar situations in order to
• share emotional support,
• discuss problems, and
• identify resources.
Being able to communicate with other parents, siblings, or patients can help you feel part of a larger community with others who are ready to help them through rough times, work through decisions and just “be there” for one another.
Getting networked is just a phone call or key stroke away. Click on registration or call 800.535.3643 and ask for Annie Reeves. CCA maintains a list of moms, dads and children interested in communicating with others. We will match you as closely as we can to someone having similar experiences.
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Frequently Asked Questions
Q. What does family networking mean?
A. Family networking is a program in which a family member mom/dad/child is introduced to another CCA family who is going through similar experiences.
Q. With whom will I be networked?
A. CCA keeps a list of families who are interested in communicating with others. CCA will match you as closely as possible to another family whose child (or adult) has the same syndrome and take into account any requests you may also have. We try to connect you with someone based on your geographic region, age demographic, syndrome, and current needs (i.e., treatments, social situations, etc.).
Q. Will the family I’m networked with live near me?
A. If possible CCA will connect you with someone near you! We have a large network of families. If not we will find someone we think you will relate to depending on your needs. With social media and video chatting options, you can connect in virtual and traditional ways.
Q. How do I communicate with the family (mom/dad) I am networked with?
A. Most families email, call, and text back and forth. Many have gotten close enough that they set up events, playdates, and gatherings together. Some even vacation together!
Q. I’m a single parent. Does your networking list include any single parents I can talk to?
A. Yes we can connect you with a single parent.
Q. Do you provide networking for the kids?
A. We have several students who volunteer in our Speakers’ Bureau program, and if you like, we will reach out to these exceptional young people for networking purposes.
Q. Is there an age range for networking kids?
A. There is not an age range; however they do need to be able to communicate with one another.
Q. I want to network with another family. How do I get connected?
A. Click on the registration button to the left, fill out the registration form, and indicate you want to be networked. CCA’s Program Director will contact you for more information, or you may e-mail her directly at firstname.lastname@example.org.
Q. What’s the best way to meet families with craniofacial syndromes?
A. While our networking program offers personal connections, we highly recommend you attend one of our Annual Family Retreats in your first few years. The connections and friendships you make will be immensely impactful in the years to come. At the Retreat, our motto is “We are family,” and we believe you will find a huge extended family if you join us!