presents

This year, due to the unprecedented COVID-19 situation, we were forced to cancel our onsite, in person Annual Family Retreat & Educational Symposium in Austin, Texas. BUT! Thankfully, our vendors, volunteers, and speakers stepped up and have helped us take the magic of Retreat online for 2020.

You can register here. Everyone must read and accept the Terms & Conditions of the Virtual Retreat before attending. DEADLINE IS JUNE 19.

If you would like to support CCA and order a keepsake “Hope is Not Canceled” t-shirt, please use this link. Proceeds will benefit CCA and the online shop will close June 5, 2020, to allow time for shipping to those who want to wear it for our GROUP PHOTO – which will be a series of webcam screenshots! Orders will be shipped directly to your home by June 24.

Please let us know if you have any questions ([email protected]). Thank you!

DAY & TIME
All Times are CDT.
PRESENTERDESCRIPTION (Audience)
THURSDAY
June 25, Thursday,
10:00am – 10:50am
Harlena Morton,
CCA Mom
The Raw Realities of Relationships When Parenting a Rare Child (Parents)
June 25, Thursday,
11:00am – 11:50am
Michael Douglas, Speech-Language Pathologist, Certified Auditory-Verbal Therapist, Consumer Engagement and Rehabilitation Program Manager, MED-ELYour World Just Got Bigger – MED-EL Corporation (All)
June 25, Thursday,
1:00pm – 2:30pm
Paula Guzzo, ModeratorPARENT PANEL: Panel Discussion on IEP’s, Advocating for your Child with Q&A (Parents)
June 25, Thursday,
1:00pm – 1:50pm
Robert Wagner,
La Jolla Country Day School Performing Arts Lead Educator
Creativity in Action! A fun, improv-like session for kids and tweens to connect with others and learn about themselves! (Kids & Teens)
June 25, Thursday,
3:00pm – 5:00pm
Cashel Gaffey, MSW
Program & Fundraising Coordinator
ConnectMed International
Parent Group Support: After hearing from our panel, talk in a supportive atmosphere with Cashel Gaffey, MSW, of ConnectMed International and other parents in a facilitated group discussion. Be vulnerable and real with in this facilitated session. (Parents)
FRIDAY
June 26, Friday,
9:15am – 9:45am
Peter the Adequate, MagicianMagic Show: Join us for a fun morning wake up call! See sleight of hand and get some laughs in with magician, Peter the Adequate! (All)
June 26, Friday,
10:00am – 10:50am
Dr. Annie Drapeau
Dr. Ibrahim Khansa
Dr. Gregory D. Pearson
, Nationwide Children’s Hospital
What to expect when you or your sibling have surgery? Nationwide Children’s Hospital for Kids & Sibs (Kids & Sibs, 6 – 12)
June 26, Friday,
11:00am –
11:50am
Dr. Annie Drapeau
Dr. Ibrahim Khansa
Dr. Gregory D. Pearson
, Nationwide Children’s Hospital
The Surgeries Offered and Why We Offer Them. Nationwide Children’s Hospital for Parents (Parents & Adults)
June 26, Friday,
1:00pm – 1:50pm
Eduardo Verestegui, YouTube Personality & AdvocateDare to Be Brave! – Motivational Speaker (Teens – Adults, 13+)
June 26, Friday,
3:00pm – 4:30pm
CCA TalentCCA’s Got Talent! Our amazing tradition continues! (All)
SATURDAY
June 27, Saturday, 9:00am – 9:50amJerry Carchi, CCA Dad & Zumba InstructorExercise Fun – ZUMBA! Class (All)
June 27, Saturday
10:00am – 11:30am
CCA VolunteersGroup Meet-Ups by Syndrome (All)
June 27, Saturday
12:00pm – 1:30pm
CCA VolunteersGroup Meet-Ups by Age (All)
June 27, Saturday,
1:45pm
CCA FamilyGroup Photo via Zoom (All)
June 27, Saturday,
2:00pm – 3:00pm
Courtney Cortina-Pineda,
Wild Things Zoofari
ZOOFARI – Animal Show (All)
June 27, Saturday,
7:00pm – 8:00pm
Jerry Carchi, CCA Dad & Guest DJAnnual Dinner/Dance (All)
SUNDAY
June 28, Sunday,
9:00am – 9:45am
David Roche, Author, Speaker, HumoristOur Hearts Do Not Keep Social Distance, Farewell Breakfast: Grab your cocoa puffs and coffee, we’ll come together one last time for an inspirational breakfast. Be ready for lots of virtual hugs as we sign off and say “See you next year!” (All)

Read all of the presenters’ bios here.

Thank you for your grant sponsorship!
Thank you for your grant sponsorship!