This Privacy Policy for Children’s Craniofacial Association (CCA, CCA Kids) describes:

  • The personal information we collect and how we use it,
  • With whom we share your information,
  • The measures we take to protect the security of your personal information, and
  • How you can communicate with us about your rights and choices.

INFORMATION TNPA COLLECTS AND HOW WE USE IT

  • Your Contact Information is used to provide information to you about your CCA resources, educational programs, public affairs issues, craniofacial-related news, and other similar information that we think will be interesting or useful to you. Contact Information includes your name, address, phone number, email address, and social handles, if you include them.
  • Your Payment History is used for accounting and receipts; tracking your donations, sponsorship, registration, and other fee payments; and thanking you for your contributions and payments. We do not store your credit card information, and credit card payments are routed through payment card industry compliant third-party payment services.
  • Online Message Boards and similar online tools maintained by CCA allow you to disclose information about yourself publicly. Because of the public nature of these tools, other online users can access information you provide.

In addition, we may also collect other technical information such as the type of browser you are using (e.g., Google Chrome, Internet Explorer), the type of operating system you are using (e.g., Windows or Mac OS), CPU type (e.g., Pentium Intel Core), your manner of connecting to the internet (e.g., connection speed through narrowband or broadband access); internet protocol address; other information about your geographic location; and/or the domain name of your internet service provider. This information is collected and shown to us in aggregate on our third party tool (WordPress, payment processors, social media, etc.). 

COOKIES AND SIMILAR TECHNOLOGIES USED ON THIS WEBSITE

A “cookie” is a small piece of data that is sent to your browser from CCA’s web server and is stored on your computer’s hard drive. Cookies are used to collect non-identifying information about the user, such as web surfing behavior or user preferences for a specific website. CCA may use two different types of cookies — session-based and persistent cookies. Session-based cookies expire at the end of a browser session and terminate once you close your browser. Persistent cookies remain on your computer until you remove them. Persistent cookies are used to provide website analytics. You can manually delete all cookies, including persistent ones, within your browser privacy settings menu.

This website may be enabled with one or more add-on Google services, such as Google Analytics or another Google service. As such, this website will collect information consistent with the terms of Google’s Privacy Policy which could include but is not limited to the collection of device-specific information, log information, location information and cookie-related information as described in the Google Privacy Policy. Because this website is enabled with one or more add-on Google services, Google will have access to and may use Google Services Collected Information that is collected by this website and may use such information to improve Google’s services. CCA will use such information, to the extent available such as by way of Google Analytics, to better understand use of the website and topics of interest to CCA members and site visitors and may adjust our marketing practices to better target information based on such information and usage.

WE DO NOT KNOWINGLY COLLECT INFORMATION FROM CHILDREN

Our website is intended for a general audience. We do not knowingly collect or solicit personal information from anyone under the age of 13 without the consent by the holder of parental responsibility. If you are under 13, you are prohibited from providing information to CCA through this website without verifiable parental consent. In the event we learn that we collected personal information from anyone under the age of 13, we will delete that information and only recollect the information after receiving parental consent. If you believe that we might have collected personal information from anyone under the age of 13, please contact us using the contact information below.

PERSONAL INFORMATION WE SHARE

We do not disclose your personal information except as described in this Privacy Policy or as we disclose to you at the time the data is collected. CCA will share your personal information in certain situations:

  • Payment Processing. CCA uses third parties to provide credit card, bank, payment and information processing services. If you choose to make a payment online, by phone, through the mail, or by other means, we will share your personal information with our processing service providers. We authorize these service providers to use your personal information only as necessary to perform services on our behalf or to comply with legal requirements. We require these service providers by contract to safeguard the privacy and security of personal information they process on our behalf.
  • Medical Emergency. CCA will disclose your personal information to medical professionals in an emergency when you are attending a CCA-sponsored event or when CCA otherwise has reasonable presumed responsibility to do so.
  • Third Party Researchers. CCA may disclose your personal information confidentially with researchers for purposes directly related to our mission and member services. Information will only be published in aggregate form without identifying any individual data subjects.
  • Necessity. CCA will disclose your personal information as necessary to protect your vital interest, protect the vital interest of another person, protect public safety, respond to government requests, and report information as required by law.

YOUR RIGHTS AND CHOICES

You have rights regarding the personal information we maintain about you. We also offer you choices about what personal information we collect from you, how we use that information, and how we communicate with you.

You have the right to:

  • Limit the sharing of your information with third parties for direct marketing purposes;
  • Obtain confirmation that we hold personal information about you;
  • Request access to and receive information about the personal information we maintain about you;
  • Receive copies of the personal information we maintain about you;
  • Update and correct inaccuracies in your personal information;
  • Have the processing of your personal information restricted or object to the processing of your personal information; and
  • Have the information blocked or deleted, as appropriate.

To exercise these rights, please contact us as set forth below. You may withdraw any consent you previously provided to us. We will apply your choices going forward.

INFORMATION SECURITY

We are committed to ensuring the privacy of your personal information and have established safeguards to help protect such information. For example, to protect your privacy, CCA uses passwords to help verify authorized user identity before granting access anywhere your personal information is stored. All online monetary transactions are done on a secure server. This means that information entered on the transaction page is encrypted before transmission. Though we strive to ensure the security of your information on our systems, no security measures are perfect or impenetrable and data transmission over the internet cannot be guaranteed to be 100% secure.

WEBSITE LINKS

In order to provide certain services and goods at our website, we contract with other companies and individuals. These additional services and goods may include links to other websites from our website. CCA’s privacy practices may not be applicable at any third-party sites. When you leave the CCA website, we have no control regarding what information may be collected about you, nor do we control what third parties might do with the information. It is important that you review any privacy policies on third-party sites carefully before you use any services or programs offered.

NOTICE TO CALIFORNIA RESIDENTS / YOUR CALIFORNIA PRIVACY RIGHTS

California residents are entitled to request and obtain certain information regarding our disclosure, if any, of personal information to third parties. As set forth in this Privacy Policy, we offer our visitors the ability to tell us not to share their personal information with third parties for direct marketing or other purposes. To receive the information described above or to request that we stop sharing your information, please contact us using the information provided below.

CHANGES TO PRIVACY POLICY

From time to time, CCA may revise its Privacy Policy to address changing technology, security measures and website functionality. We will send all email subscribers an alert and/or post a prominent notice on relevant websites to notify you of any significant changes to our Privacy Policy and indicate when it was updated.

HOW TO CONTACT US

If you have any questions or comments about this Privacy Policy or our privacy practices, or if you would like us to update information or preferences you provided to us, please contact us at [email protected], or by postal mail at:

Children’s Craniofacial Association
15851 Dallas Pkwy. Ste. 245
Addison, TX 75001

Updated 14 June 2024